Showing posts with label Photo. Show all posts
Showing posts with label Photo. Show all posts

Thursday, January 7, 2010

Wednesday, January 6, 2010

Tuesday, January 5, 2010

A Photo a Day - January 5, 2010

(Excuse the mess. The new beds are actually the first thing I have brought for thier new room. Plenty more decorating to come!)

December 14th 2009

(FIRSTLY - is anyone else having trouble with Blogger? My post is all stuffed up and it's done
all its own editing - fonts and font size etc!)

This was the day Zachary we went in for his first dose of Botox. We headed up to Sydney the afternoon before and spent the night at Ronald McDonald House Randwick. Met some lovely people and heard some amazing and some sad stories. I tell you staying there really makes appreciate each day more, your children and what you have - or don't have as the case may be.

8am and Zach was admitted. Being one of the youngest he was 2nd on the list. Zach freaked out as we wheeled him in (Anna had to be held back kicking and screaming by Nanny - poor baby girl). His cries got slower and slower as he drifted off to sleep. 40 minutes later he was back and he was upset but he soon settled down and then drank a whole cup of juice and 2 sandwiches. An hour later all seemed well and we were sent home. We had decided to spend the night at RMHagain and I'm just so glad that we did. Within 30 minutes of being back there Zach was getting very lethargic and also feeling very warm. We ended up taking his temperature it found it to be 38c. I called the ward and was advised to take him back to Children's Emergency, which we did. A small walk up to the hospital only to find his temperature was now 39.9c! It took 4 hours but we managed to get it down to 37.5c and another hour later it was still the same so we were sent on our way. By morning he was still a little warm but ok. It was scary to say the least but I was glad to be heading home.

That's when Dr Google came into play. After researching his symptoms I came up withMalignant Hyperthermia and guess what, its in our family. My Uncle (my Mum's
brother) flat lined on the table during an operation. So it is advised that we treat him like
he has it until we get some DNA testing done. More things he doesn't need.

So that was our first experience with Botox. Even though it wasn't the Botox that cause
the problem. We head back to Sydney on the 14th for a follow up visit and some
casting - I don't know how he will take that. Other than that Zachary is doing well.
He is talking incredibly well now and is such a funny little boy. TheraTogs are working
wonders and most days he actually asks to wear them and his AFO's! I guess he can see
the benefits.

In other news.....

Zachary and Anna got toddler beds for Christmas. My brother put them together for me
recently they have just been sitting in my room because their new mattresses hadn't
arrived. Today they did! I quickly got rid of the cots and put their beds in their room.
They were so excited! I also got them new quilts and junior pillows. Today's task - finish
their quilt covers and pillowcases. That I achieved!

One new Thomas Pillowcase - fabric was an ebay purchase



One new Thomas bed and Thomas quilt cover! (Panel from Spotlight and backing is a queen
sized white sheet that I got for $7 and did both covers and pillowcase!)


One new Dora pillowcase - another ebay purchase


Lastly is the new Dora bed (minus the stickers. I'll bed putting them on when no one is
watching!) and Dora quilt cover. Again the panel is from Spotlight.


My photo for today is coming - I don't think these count. Lol!

Thursday, November 12, 2009

Hmmm.....

I haven't totally fallen off the face of the planet - I'm still around but things have been pretty hectic here. So, what have we been up to...??

In general:

As most people know, moving house is usually a pretty big thing. And time consuming! Who out there was still unpacking boxes 3 weeks later? Moving with 2 x 2 year olds and a 5 year old that just wants to be helpful is very tiring but thankfully with a bit of help we got here and we are loving it. The house is pretty much set up, I'm now down to adding our own touches. Pictures on the wall, rugs etc. Than all that's left is sorting out some boxes still in the garage into chuck, donate and sell piles - not really looking forward to that. Really tempted to just chuck but I really can't see things that are perfectly good go to the dump! Hoarder much...??

Now down to us:

Ashlee.....has been sick, a lot, lately. I really don't know whats up with that. Monday she had her high school orientation day but by the time she got home she was like death warmed up and has been home from school ever since. She will stay home again tomorrow just to be sure and hopefully is right for Monday. Her finger is finally de-splinted and tomorrow morning we are heading back to the OT for a final check up. All should be good as she hasn't any pain lately, a good sign that after over 5 months it is finally healed! Other than all that it is all about decorating her new room and getting ready for high school next year.

Mitchell.....is starting school in January. I can't believe my little boy is that grown up! Last Thursday and today we had his Kinder Orientation. He enjoyed it and I think he will be fine next year. Compared to the other kids he is HUGE! People do comment on his size and are surprised when I tell them that he is only 5 but never thought anything of it until I saw him with these other children. He is considerably taller than them and taking after his Dad he is pretty solid too. By solid I mean solid not fat by any means.

Zachary.....is advancing nicely. He no longer gives wearing his AFO's a second thought and they are just a normal thing for him now. Zach has decided that getting around at home is much nicer when he is pushing a little ride on 4 wheel bike with a handle than his walker so we now keep his walker for going out. His physio is really happy with this as he was getting to 'good' with his walker and not really stepping properly just dragging and sliding and relying on the walker to hold him up. With the bike he has to work a little more to stay up right and has to slow down and step properly. We are finding that he tripping on his feet a lot more now as his right foot turns further and further in. We are really trying to work on his leg with physio at the moment but we are also looking forward to botox and hoping that after December 14th and some intensive therapy for a few months following things might just be a little better for him. A wheelchair is on order at the moment but really long term we are hoping we know he won't need it. Especially with his determination and great rehab therapist Damien. He has CP himself and really gives us hope!


Anna.....well Anna as of yesterday has been officially diagnosed by our Paed with Asthma. We now carry Ventolin and a spacer EVERYWHERE as he feels she is not in the best shape at the moment but he has also put her on Singulair to take daily as a preventor. My little girl has been constantly unwell since she was admitted to hospital with pneumonia last month and is still not back to her normal self. We are going back to the see Dr Rosier again in a month for a follow up check up and take it from there. At the moment she is a bit of a mystery. Anna is also sporting a cut knee after falling twice on the same knee and also a cut and bruised cheek after a run in with the window sill in the play room. I think both of things can be put down to her vision as every time she refuses to wear her glasses we end up with some kind of fall. We see the Eye clinic again in March to reassess her for surgery.

Me.....I'm going well, a little tired from all the running around to appointments and late nights but getting there. I'm sick of these heat though! Its way to hot! Carting the kids around in this heat everyday is just making everyone tired and cranky.

Next year I will be returning to study - more on that later......

I'm going to call it a night now, its nearly 10pm and I need to be up and out the door before 8am for Ashlee's OT appointment in Belconnen. I really need some catch up sleep!

But lastly just because I can.....sweet little blue baby!



Baby Caleb

Monday, September 14, 2009

All the pretty flowers

Saturday was the opening of 'Floriade' here in Canberra. It was a beautiful day so we packed up some food, put on our walking shoes and headed over. Although not all the flowers are out yet we still had a great time...

looking...


at...


all...



the...


pretty flowers...


and some pretty decorations around the place too!


We took time to smell the flowers... (in her 'princess dress')



and to spend time with each other...



And have lots of cuddles...



and run toddle around...



eat Salt n' Vinegar chips...



Got 'tattoo's'...



And just have some real good fun!



Sadly we were missing one very important member....Mitchell who was with his Dad.

I...



love...


(taken the other day)

my little...



happy family...



And the best thing we did all day?!



We laughed, enjoyed ourselves and put everything a side for the day.

Sunday, July 26, 2009

Faith

Today I took the kids to church. I grew up like this, my Dad used to take us every Sunday and I did really enjoy it. The church we went to is the church I grow up in, there were some familiar faces and plenty of new ones.

The kids had a great time. Sunday School Mitchell and Creche for the twins. Mitchell even asked if we could go again tomorrow! It has been over 5 years since I went last. (D)ExP wouldn't allow it and we didn't live close enough anyway but today I decided it was time to return and see how it went. I really did feel a since of peace and comfort and wasn't at all worried about (D)ExP's reaction. He would whole heartedly be against the kids attending. I think I need this, faith and support from some lovely people.

Not much else going on. When we got home Mitchell laid in my bed and watched High 5 and rested. The Zachary and Anna went to bed, Mum and Ashlee went to the Fruit and Veg Market and I laid down on the couch with 2 Panadine to try and get rid of a lingering Migraine I have had for 3 days now. It seems to have worked, currently pain free!

Mum and Ashlee have gone to the evening service and I'm feeding, bathing and loving my other children. Off now to do a bit more of that.....

Please keep Baby Stellan in your prayers as he is not doing to well at the moment.

Lastly, here are a couple more photos of my loves.....

A new thing with Anna is hair......we turned this:



Into this:



Zachy loves his walker - and I love this face!



And his cute little chubby feet! (but not the biscuit on the carpet!)







That's my boy!



Mitchell and Scooter - birthday present!



This photo was actually taken by my talented daughter!



And this one too!



And lastly - The Girly Girl

P.S I've been 'playing' around in photoshop way to much! - these actions are all from The Pioneer Women!

Thursday, July 23, 2009

Just another day

Today has been one of those days. You know the ones where you spend the entire in your PJ's and only dress the kids because they have taken their PJ's off themselves and you need to get something on them just so they won't remove their nappies. I know you have all done it!

Lately I have been SO tired! Sometimes I have days where I can barely drag myself out of bed and I'm nearly falling asleep by lunchtime. I put everything done to just stress but after seeing my doctor apparently it could be a little more serious then that. Apparently I have a very high resting heart rate (resting heart rate of at least 105!) - its been this way for years now. I tire extremely easy, I have been having chest pain for like 10 years now (but it is a lot more frequent in the last few years and even more so in the last few months), can't walk distances without running out of breath, I get facial flushing, tingling in my hands and feet, extremely cold hands and the list goes on. Apparently I can't just put all this down to stress. So, off I go for a round of blood tests and a 24 hour heart monitoring to start with. You see the doctor thinks that my symptoms may have something to do with my heart. She didn't however tell me what she suspected so silly me turned to Google doctor - I know not to google things like this but I went and did it anyway. Bad move........apparently I'm dying from heart failure or something. No really I shouldn't be laughing because this could be quite a serious matter and it is really the last I need. I'm praying that it is nothing serious.

Ah, so tomorrow is another day. Ashlee is staying with my brother and his wife tonight, Mitchell is in bed (long ago), Anna too and Zach, well he finally gave in about a 1/2 hour ago. Now I'm off to bed - late I know, but with any luck I'll have a sleep in in the morning. Zach is my usual early riser but after tonight's late night I think he'll need some sleep!

Thank you all for your lovely comments too! And lastly, just another happy snap from days gone by.