Hmmm.....

I haven't totally fallen off the face of the planet - I'm still around but things have been pretty hectic here. So, what have we been up to...??

In general:

As most people know, moving house is usually a pretty big thing. And time consuming! Who out there was still unpacking boxes 3 weeks later? Moving with 2 x 2 year olds and a 5 year old that just wants to be helpful is very tiring but thankfully with a bit of help we got here and we are loving it. The house is pretty much set up, I'm now down to adding our own touches. Pictures on the wall, rugs etc. Than all that's left is sorting out some boxes still in the garage into chuck, donate and sell piles - not really looking forward to that. Really tempted to just chuck but I really can't see things that are perfectly good go to the dump! Hoarder much...??

Now down to us:

Ashlee.....has been sick, a lot, lately. I really don't know whats up with that. Monday she had her high school orientation day but by the time she got home she was like death warmed up and has been home from school ever since. She will stay home again tomorrow just to be sure and hopefully is right for Monday. Her finger is finally de-splinted and tomorrow morning we are heading back to the OT for a final check up. All should be good as she hasn't any pain lately, a good sign that after over 5 months it is finally healed! Other than all that it is all about decorating her new room and getting ready for high school next year.

Mitchell.....is starting school in January. I can't believe my little boy is that grown up! Last Thursday and today we had his Kinder Orientation. He enjoyed it and I think he will be fine next year. Compared to the other kids he is HUGE! People do comment on his size and are surprised when I tell them that he is only 5 but never thought anything of it until I saw him with these other children. He is considerably taller than them and taking after his Dad he is pretty solid too. By solid I mean solid not fat by any means.

Zachary.....is advancing nicely. He no longer gives wearing his AFO's a second thought and they are just a normal thing for him now. Zach has decided that getting around at home is much nicer when he is pushing a little ride on 4 wheel bike with a handle than his walker so we now keep his walker for going out. His physio is really happy with this as he was getting to 'good' with his walker and not really stepping properly just dragging and sliding and relying on the walker to hold him up. With the bike he has to work a little more to stay up right and has to slow down and step properly. We are finding that he tripping on his feet a lot more now as his right foot turns further and further in. We are really trying to work on his leg with physio at the moment but we are also looking forward to botox and hoping that after December 14th and some intensive therapy for a few months following things might just be a little better for him. A wheelchair is on order at the moment but really long term we are hoping we know he won't need it. Especially with his determination and great rehab therapist Damien. He has CP himself and really gives us hope!


Anna.....well Anna as of yesterday has been officially diagnosed by our Paed with Asthma. We now carry Ventolin and a spacer EVERYWHERE as he feels she is not in the best shape at the moment but he has also put her on Singulair to take daily as a preventor. My little girl has been constantly unwell since she was admitted to hospital with pneumonia last month and is still not back to her normal self. We are going back to the see Dr Rosier again in a month for a follow up check up and take it from there. At the moment she is a bit of a mystery. Anna is also sporting a cut knee after falling twice on the same knee and also a cut and bruised cheek after a run in with the window sill in the play room. I think both of things can be put down to her vision as every time she refuses to wear her glasses we end up with some kind of fall. We see the Eye clinic again in March to reassess her for surgery.

Me.....I'm going well, a little tired from all the running around to appointments and late nights but getting there. I'm sick of these heat though! Its way to hot! Carting the kids around in this heat everyday is just making everyone tired and cranky.

Next year I will be returning to study - more on that later......

I'm going to call it a night now, its nearly 10pm and I need to be up and out the door before 8am for Ashlee's OT appointment in Belconnen. I really need some catch up sleep!

But lastly just because I can.....sweet little blue baby!

Baby Caleb

Just a couple of things....

Firstly, on Monday we picked up our glasses....Anna and Me.

Is she just the cutest?! Excuse the messy hair but hey its the new black, right?

She loves them, most of the time and I have found they are very strong because she has already throw them on the floor a few times and bent the arm which thankfully just bent right back.

Yesterday we went and picked up these.....

Notice no pics of Zachary wearing them....that's because once we took them off yesterday afternoon he was not having a bar of them again. This morning I struggled for a while to get his foot in the right position to slip right back in the heel and when I did finally get them on him he refused to stand at all and just cried non-stop for over an hour! Tomorrow we head back to The Spastic Centre just to make sure that they are fitting properly. Knowing Zach it is just a refusal to wear them that we are going to have to work through.

Just pure stubbornness really! Oh and check out the just got up recently do!

We also need to go shoe shopping and pick him up a new pair of shoes that fit - they say go up a size with splints on right?

Just Mitchell, looks so sweet doesn't he?

Did I tell you that I have two sets of twins?!

Nah, just joking. Ashlee and her friend could almost pass for twins though don't ya think?

Lastly, I actually have some sewing in the works! Can you believe it? I had to borrow my SIL's machine as mine is packed away in storage. I'm making a hooded towel, a baby blanket, a bib and 2 burp cloths for a friends dear sweet little girl born on Monday. Welcome little Bridie! Everything is cut out and pinned up and tonight (once the kiddies are sleeping) I will just whip around them with the machine and package them up ready to send off. Photos I promise!

Currently Zach and Anna are sitting on the kitchen floor eating strawberries that Anna raided from the fridge, at least its healthy!

The Eye Clinic and Hearing Tests

Yesterday we headed to Sydney....again but this time it was for Anna. Ashlee commented on how weird it felt to be here and not have anyone look at Zachary!

The Eye Clinic at The Sydney Children's hospital is where we headed and the news was as expected.....surgery. Thankfully though he wants to hold off until she is a little older as it makes it much easier to do. In the mean time though, glasses. All day, every day until she gets the surgery. He did say though that wearing the glasses gives her a chance (although a VERY small one) that she will not require the surgery. Keeping my fingers crossed for that one!

It was a terribly long day and we didn't get home until after 10pm. Leaving Sydney during peak hour traffic....horrible! I'm glad I don't have to do that every day! The kids travelled exceptionally well though and were very good all day which is such a bonus. Anna didn't even freak out and break down in tears when they were examining her! Double bonus!

In other news Zachary and Anna had hearing tests last week. Mainly because they never did get hearing tests at the hospital and being prem they have a higher risk. It was a total shock.....Zachary failed, just. That wasn't so much a surprise but Anna, she failed with a capital F! I have never had any concerns with her hearing but we do have to go back next week and get retested. Lets hope it was just a bad day for her and she will do better next time. If not....well then I don't know......

Better head off, need to get this script down for her glasses. How much will that cost? Also need to get caught up on all this washing and be at the doctors by 1:30pm. Did I tell you that I have a Anterior subluxation of the 3rd and 4th distal vertebrae of the Coccyx (or something like that...hehe). Basically it means that my last and second last bone of the tailbone are dislocated and have been since I had the twins. There is really no treatment short of surgery to remove the coccyx....ahhhhh! I am seeing Zach's physio as she thinks that she may be able to get some pain relief but I'm waiting to see the Orthopedic Surgeon too. It never rains it pours!

Speaking of pouring, we got caught in a huge storm on our way home last night where we had to do about 10/kph because I couldn't see a thing and my passenger side wiper decided to stop working! Still need to look at that. As I said it never rains it pours!

Also Zach gets his AFO's on September 29th! Yippee!

Running now, have a great day!